Rare Trait Swiss
Rare Trait Swiss is an independent, non-political non-profit association whose nature is to work for; benefiting patients with Aspartylglucosaminuria (AGU), informing and promoting treatment research to patient families and healthcare professionals, and helping to find a cure.
Key Milestones
- Manufacture the medicine
- Complete the toxicology study and validate the treatment by health authorities
- Fund & prepare the clinical trial.
Our Objectives
- Raise Public awareness about the problems that AGU patients are facing.
- Finance the treatment and fund the clinical trial intended to cure patients suffering from AGU.
Our team
Samir Boucherifi:
Papa de Selman, président et fondateur de Rare Trait Swiss
Sarra Mekki:
Trésorière et fondatrice de Rare Trait Swiss
Jocelyne Gabriel:
Secretaire, et présidente de VML (Vaincre les maladies Lysosomales)
Aziz Oubeid
Conseiller IT et vérificateur aux comptes
Marianne Bruchez Spicher:
Pédagogue au SEI (Service éducatif itinérant)
Our Partners