Our Partners

Our partners

Rare Trait Hope Fund

Rare Trait Hope Fund is a 501(c)(3) non-profit organization (EIN 46-2762646) with the mission

  • to raise funds, facilitate research and support development of treatments and a cure for Aspartylglucosaminuria (AGU);

  • to be the resource for doctors, scientists and families world-wide;

  • to increase awareness of rare diseases in general and Aspartylglucosaminuria in particular.

Rare Trait Hope Fund gives grants to groups and organizations that work directly on finding a cure and/or developing a treatment for Aspartylglucosaminuria. We do not cover indirect (overhead) costs on any research grants. If you are interested in the work related to Aspartylglucosaminuria, please contact us at kids.progress(at)raretrait.com.

Together we can achieve our goals and make the difference in fatal diseases.

Rare Trait Hope Society was founded in Vancouver, British Columbia in September 2020 in order to raise funds for the development of a cure for Aspartylglucosaminuria (AGU), an ultra-rare neuro-degenerative disease that affects about 200 children worldwide. The Society works together with Rare Trait Hope Fund, a 501(c)(3) registered charity in the United States, to raise money to fund expenses associated with the preparation for and conduct of an upcoming gene therapy clinical trial.  Together, we need to raise US$2 million and we hope to raise $500,000 of that here in Canada.