Latest Post

VGXI, Inc. Partners with Rare Trait Hope Fund in Support of Gene Therapy for Rare Disease, AGU

https://www.heidi.news/sante

Notre parcours raconte dans l'illustré: Aidez-nous à sauver Selman

illustre.ch/magazine/aidez-nous-a-sauver-selman-le-combat-de-deux-parents-pour-guerir-leur-enfant 

ILHP2021_27_0034_0037_PETIT_GARCON_MALADE-copie789-1“] 

Thursday June 24th We were live on Radio Fribourg : La Cafète

Hope for a cure_ help Selman heal

Trisha, an Australian girl fighting AGU

https://www.news.com.au/lifestyle/parenting/kids/aspartylglucosaminuria-australian-girls-battle-with-one-of-the-worlds-rarest-diseases/news-story

How a gene therapy changed the lives of two Canadian girls

https://www.ctvnews.ca/health/her-body-was-a-prison-how-a-new-gene-therapy-changed-the-lives-of-two-canadian-girls-1.5356554

Makeda, a Canadian girl fighting AGU

News 2021

 06 Mars 2021: rare-disease-day in Switzerland: https://www.proraris.ch/fr/journee-maladies-rares-mars-2021-506.html 

05 Mars 2021: Rare Trait Swiss is officially founded 

Archives

CTV

https://bc.ctvnews.ca/vancouver-mother-of-girl-with-rare-fatal-illness-now-raising-money-for-clinical-trial-1.5216618

Mornings with Simi

Vancouver Sun
https://vancouversun.com/news/local-news/metro-vancouver-mom-aims-to-raise-500000-for-drug-that-could-save-daughter

Vancouver Is Awesome
https://www.vancouverisawesome.com/vancouver-news/vancouver-mother-fundraising-to-save-daughters-life-from-extremely-rare-disease-3162821